Data and Sample Management

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Data and Sample Management 2017-05-20T17:01:54+00:00

Data Management

The Data Coordinating Center (DCC) is located at the University of Texas Southwestern Medical Center in Dallas, and is responsible for the design, management, quality control, and accuracy of the Texas Alzheimer's Research and Care Consortium (TARCC) data file for analysis. Data reporting and distribution are designed to meet the needs of investigators and research projects as approved by the TARCC Steering Committee and the Texas Council on Alzheimer's Disease and Related Disorders. Coordinators at each member site are responsible for completing and submitting the data forms to the DCC on all TARCC research participants. Data forms are available in English and Spanish. The DCC also receives results of laboratory analyses performed by Myriad Rules Based Medicine, the Ballantyne Atherosclerosis Clinical Research Lab at Baylor, the O'Bryant Lab at UNTHSC, and GWAS analyses from the University of North Carolina at Chapel Hill. Lab information is merged with the clinical, demographic, and neuropsychological data in the TARCC database.

Tissue Management

The Tissue Bank (TB) is located at the University of Texas Southwestern Medical Center in Dallas and manages all sample processing, DNA extraction, APOE genotyping, handling, storage and shipment for the dedicated TARCC bio-banking facility. Freezerworks software is used to track submitted lab samples and updates records when samples are distributed for special analyses at Myriad Rules Based Medicine, the Ballantyne Atherosclerosis Clinical Research Lab at Baylor, the O'Bryant Lab at UNTHSC, and GWAS analyses from the University of North Carolina at Chapel Hill. The TB ensures samples are maintained for current and future research interests requiring DNA, whole blood, plasma, and serum on the TARCC cohort. Results are reported to the DCC and are merged with other participant data elements.